CHILDREN'S TUMOUR FOUNDATION

A lifelong journey

Living with a rare disease can be hard. Many struggle to find the right diagnosis, get access to the right treatments, or any treatments at all. Sometimes, they face discrimination, stigma or even exclusion. Those living with the condition notice every small change about themselves and wonder what it could mean.

Neurofibromatosis can cause tumours to grow on any nerve ending in a person’s body and therefore each person will face different challenges and potential complications depending on the size and location of the tumours and their rate of growth.

Fortunately, some people will only ever develop mild symptoms, but others will have ongoing, complex health issues that may eventually become life-threatening. Each person has a unique journey and their needs change as they move from childhood, through adolescence and into adulthood.

tackling nf

The Children’s Tumour Foundation is the national voice for the NF community.

 We believe that tumours should never be a person’s normal.

support

Addressing immediate needs

Beyond the need to treat the physical symptoms of NF, we create opportunities to learn and to come together in safe and supportive spaces.

advocacy

Leading change for a better tomorrow

NF is progressive, painful and unpredictable. Our goal is to make life more equitable for those living with this complex genetic condition.

research

Giving hope for a future free from tumours

We are one of Australia’s leading charitable contributors to NF research with millions of dollars invested into key projects through on-going advocacy efforts and direct funding.