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Neurofibromatosis

150 children are born with neurofibromatosis each year 

Neurofibromatosis is a complicated condition, with symptoms differing from person to person.

Its impact can be both visible and invisible. You may barely notice you have it or it could be life-threatening.

It is present from childhood and its impact is felt throughout a lifetime, and by the whole family.

what is nf?

Neurofibromatosis (NF) is a set of complex genetic disorders (NF1, NF2, and Schwannomatosis) that affects almost every organ system, causing tumours to grow on nerves in the brain and throughout the body.

NF can lead to a range of significant health issues including deafness, blindness, paralysis, physical difference, bone abnormalities, cancer, learning difficulties and chronic pain.

NF can affect anyone regardless of ethnicity or gender. It is impossible to predict how mildly or severely someone with NF will be affected and roughly half of all cases arise in families with no history of NF. 

There is no known cure, and treatment options are limited.

 This May, you can help tackle NF tumours step by step.



Funds raised from Steps towards a cure will promote world-class research as we work towards developments in treatments and finding a cure for Neurofibromatosis.


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