This May, join me in tackling 150KM for the 150 children born with NF in Australia each year!

Neurofibromotosis awareness and research became a cause close to my heart when my dear friend Cybele's daughter was diagnosed with NF1, and I saw first hand the heartache and uncertainty this diagnosis brings.

One in 2000 babies are born with NF, more common, but less known than Cystic Fibrosis, Muscular Dystrophy & Huntington's. 50% of NF1 patients can live normal lives, the other 50% deal with devastating symptoms which worsen on a sliding scale. NF1 can lead to disfigurement; blindness; skeletal abnormalities; dermal, brain, & spinal tumours - which can develop into cancer; loss of limbs; & learning disabilities.

There is no cure and treatment options are limited. I am participating in Steps for a Cure to grow awareness of this condition and raise funds for much-needed research into more effective treatments – and eventually, a cure.

Please support me, because together, small steps can be transformed into huge strides in the advancement of care for those living with NF.