This May, join us in tackling 3400 for the 150 children born with NF in Australia each year!

We are participating in Steps Towards A Cure in support of our main man Barney and the Children's Tumour Foundation (CTF) and those impacted by neurofibromatosis (NF) in Australia. 

More than 13,000 people across Australia are impacted by this rare and complex genetic condition that causes tumours to form around nerves, under the skin and deep in the body. Barney has these tumours in his brain. Progressive and unpredictable, these tumours can lead to physical differences, blindness, deafness, learning difficulties, chronic pain, scoliosis and in 10% of people living with NF, they can become cancerous. Barney has had a full spinal fusion for scoliosis and faces many learning challenges at school.

There is no cure and treatment options are limited. Every 3 days a child is born with NF in Australia, but they will need a lifetime of support.

We are stepping up for NF because we believe tumours should never be a person’s normal. We have a goal to raise $15000 to grow awareness of this condition and raise funds for much-needed research into more effective treatments – and eventually, a cure. Please support us because together, small steps can be transformed into huge strides in the advancement of care for those living with NF. 

Every one of us can make a difference, and every dollar brings us a step closer to rewriting the story of NF.